About nine migraines per month, according to a woman, have taken control of her life.
Delyth Jones, 32, from Ceredigion, claimed she missed her kids' school plays and sporting events as a result.
A former general practitioner who lost her job after being diagnosed with a chronic migraine has started a volunteer support group in Cardiff, citing a lack of support.
According to the Welsh government, bettering care and services is a priority.
Ms. Jones first experienced migraines when she was a teenager, and she described the pain as "intense.".
She explained, "It starts as a slight tingling behind my eye and I think, 'oh yes, I'm going to have a migraine today.
It feels like a tremendous pressure is building up behind my eye and moving backwards toward the back of my head. I struggle to put into words the pain. ".
According to Ms. Jones, some of her headaches can last for days.
"As a mother of three, it has a significant impact on my life. I've missed events like school concerts and sporting events, she claimed.
"I've become a nervous person. I'm worried that when I say I have one, people won't believe me. I'm feeling alone.
"Not many people I know have them, and I can't explain how I feel to others because they don't understand,". ".
When Ms. Jones went to the doctor about her migraines, she claimed she struggled with a lack of support.
"When I visited the doctor, no literature or suggested support groups were offered; they were simply happy to prescribe me the medication and essentially say, "That will help you.
"It makes me nervous. Your life is in its hands. ".
Having been diagnosed with a chronic migraine, Dr. Anna Maclean, an ex-GP, was fired from her position. She founded a Cardiff support group for the condition last year, and it now has 60 members.
Dr. Maclean said, "Wales doesn't have a lot of expertise, but I'm sure people are doing their best in the challenging NHS environment.
"So I've just tried to help people, and me and another GP have set up this group because there are so many people.
They all connect with others who share their symptoms through the group, which helps them to feel less alone.
"It's important to make migraines visible. It absolutely ends your life even though it doesn't kill you. ".
However, more funding is required to improve care in Wales, according to Dr. Llinos Roberts of the Royal College of General Practitioners. GPs can refer patients to headache clinics.
We are aware of how widespread migraines are, but the complexity comes from the variety of symptoms people can have, the expert said.
There are some symptoms that are more frequent than others, including headaches, especially on one side of the head, nausea, and vision issues. however, depending on the individual, these may change.
Perhaps more funding is required to enable patients to consult with specialists with a specialization in migraine treatment. ".
To raise awareness, according to the charity The Migraine Trust, there is still a "long way to go.".
Its research indicates that one in ten people in the UK and one in seven people in Wales suffer from the condition.
The Welsh government, according to its CEO Rob Music, "could do a lot," he said.
Think about how frequent my migraine is, the effects it has, and how poorly understood it is.
"I think we strongly believe that the migraine must take certain steps in order to reach the point at which menopause is now. ".
The Welsh government acknowledged that migraines can have "debilitating effects.".
According to the statement, "We are committed to working with the NHS to improve care, services, and access to services.".
It stated that a headache toolkit had just been released to assist front-line clinical teams in making diagnoses and formulating treatment plans for patients.
